Showing posts with label mom with RSD. Show all posts
Showing posts with label mom with RSD. Show all posts

Tuesday, April 19, 2016

Advil Film Coated Helps Me Have A Productive Life

** I received samples and coupons via Crowdtap and Advil, in return for my honest review. All opinions are my own. **


I know that most of you know by now that I suffer from a few disabilities and chronic pain disorders. So, I won't get to involved in that part of the story. Most recently, I tore another tendon, my Achilles tendon, in my left foot which was replaced once already. There was also a lot of damage to my ankle, joint, and of course, the infamous extra osteoarthritis that just keeps getting worse. If you ever tore or ruptured a tendon before, you are probably aware of the eye watering pain that goes along with this. and it never, ever goes away.


The bottom right photo shows how swelled up my legs and ankles get on bad days. Usually every night, days when it's cold, raining, snowing, or if bad weather is on the way, or if I am doing a lot around the house. I apologize for the icky picture lol! My skin is insanely dry and I have rashes and burns and blisters most of the time, so, it isn't the prettiest thing in the world. I have to wear non weight bearing walking boots to get around the house a little bit. As much as I try to do without these annoying robot boots, I can't go to long without them. If I stay still or sit or lay down for just a few minutes, my whole morning restarts and it takes a couple of hours, sometimes more, just to get moving again and reduce the swelling. 

I have been using Advil for several years. My husband also uses Advil for his headaches, migraines, and back issues. (We're like a chronic pain, arthritis, ortho problems couple lol!) and I have been using them as a part of my own pain regimen. I have to say that when I do have a headache, Advil is usually the only thing that works and they always worked fast. However, between the 2 newer Advil products that I have been using, Advil Film Coated and Advil Liqui Gels, I am thrilled with how quickly these start to kick in and get me back up and moving. Even if it is to just do the dishes or help one of my little ones get a shower or make dinner. 

I know that regular Advil has always helped me previously, when I wasn't in the shape I am in now. Whenever I had a break or a sprain in my feet or ankles, I would rely on Advil to help me get back moving and working long hours and late nights as a bartender for many years. As things progressed, it does get to be a  bit more of a project to try and find something that helps relieve pain. I don't expect 100% pain free days or anything like that! I am just content with a little bit of help. Seeing that Advil Film Coated helps with my severe swelling as much as it does, I can imagine that they would knock aches and pains right out of people who need them just some of the time and just for other types of pains. But for somebody with chronic pain and other disabilities, that little bit of relief is a blessing! 

What do you think of the new Advil Film Coated? What do you think? What kinds of aches and pains would they help keep under control for you? 

You can sign up to receive coupons and offers from Advil, here! 


** Please be careful and read the dosage! Of course, you should also always, always, always, discuss any medications with your doctor, FIRST! You should NOT take more then 6 200 mg Advil Film Coated or Advil Liqui Gels in a 24 hour time period. This is extremely important! The dosage is ONE 1 pill, not 2, or 3. (I knwo, sometimes it's easy to grab a couple or to not keep track.) But, you should keep a diary or a chart of some sort if you are taking these or any medication on a regular basis so that you can be sure to NOT overdose! (This benefits busy moms and dads when a child is sick also.) ALWAYS, write down the time and dose of any medication given. This is one of the leading causes of overdoses. **

Saturday, March 14, 2015

No Pain No Gain?



It's funny how pan/chronic pain works. Sometimes, a new layer of pain just hits you out of nowhere and you wish for it to subside a bit or just go away for good but it usually always just sneaks up on you again. (If it disappears.) It's like having a new "demon" and just when you think you can not handle anymore, BOOM! Here comes more pain layers, just to prove you wrong unsure emoticon
Your first thoughts are, "When will this go away?", "Why is this happening?", "I can't live like this!"
and then, you go to get your xrays, mri's, ct scans... sometimes they come back and say maybe it's just getting worse. Maybe it's just hitting the next level. Or, oh, there seems to be more going on in there. Your plantar fasciia ruptured, (or fill in the blank with whatever bone/tendon/joint/tissue).... and the horrific words, "There really isn't anything we can do but help manage the pain."
Depression sets in and you hate yourself and everything makes you sad. Your kids say, "Mommy, I thought they were going to fix your ankles and feet so you can run again?" and you just collapse and hobble to the bathroom to cry without anybody looking.
That typically lasts for a few days, maybe a week.
Then you start to get stubborn and refuse to accept it. You Google search as much as you can, is there anybody out there who can fix me?
You laugh and say it doesn't matter because it isn't going to hold you down and you refuse to accept that this is just the way it will be.
Then, you try and focus on the fact that, "Somebody is always worse off." and you even see FB posts of those who are worse off. It's not that it helps you feel better. I don't wish for anybody to suffer. But, it puts my life into perspective and reminds me to stay strong.
So, you end up realizing finally, that you're not going to get better. This is it. Meet the new you.

 "Hello, new pain. It's nice to meet you. I hope to gain something out of our time together. Possibly you will teach me new things or make me aware of something I never knew?"
No, usually the new pain doesn't answer. But, it'll always let you know it's there. The throbbing, burning, searing, electrical shock, stinging, cramping, cracking, popping, pounding signals that always lets you know, "You're still alive!"
Sure, there will be days when you just want to sit and cry. There will be days you wish you could wear shoes, take your kids to the playground, play soccer in the yard with your kids, walk through a store without needing a cart or shelves to keep your balance and all of those other fun things other people get to do.
There will be days when you just want to hide and not have to go outside only to be stared at because of your enormous, elephant legs, or your huge ankles or the stupid clothing you have to wear because everything hurts when it touches your skin.
Then you start wishing you could buy the newest, brightest sneakers that came out, shave your legs regularly and maybe walk like a regular person does.
But, after a few bouts of crying, wishing, hoping, praying, you have no choice but to get right back up and fight.
There aren't any choices anymore. You just HAVE to deal with it and there isn't anything anybody can do to take it away.
Just accept that this is you and count your blessings now.
It makes me laugh when people ask, "Why would you get such a stupid tattoo? Why on earth would anybody want Pinhead on their back?" LOL well, after laughing and replying with some smartass comment about how it is none of their business, if the person is still listening or shows some kind of interest...(this maybe happened 3 times LOL) then, i'll start to explain the reason. (Not that it's any of their business, but sometimes people are just curious.)
 I always did love horror movies, especially Hellraiser. Pinhead has always been the coolest horror dude out there lol, (to me at least.)
I always thought it would be the neatest tattoo ever, (and I can't wait to be able to get finished!) but, since my dilemma with chronic pain/RSD/bones/tendons whatever else is on my "list" on my medical papers, the movies, the story, the meanings behind some of my favorite Pinhead quotes, lol, made more sense. Maybe they are just my meanings, since some of the meanings seem to have changed to more inspiring things, that fit my battle to a T.
As stupid as it sounds to people, it has helped to inspire me and helps my outlook on life and where I am and who I am today.
I used to laugh at the Nike quote, "No pain, no gain" but over the past 10 years, I've found that to also have new meaning too. I don't know if Nike meant to do that. But they did. Even if I can't wear their sneakers lol.
So, now, I'm in this place, sure it's very painful and it hurts in more ways than one. But, I accepted it and will focus on gaining more strength, mentally and physically. I found new hope, maybe it's ridiculous.But, I will be focusing more on my left side, hoping for some surgical procedures, injections, etc and the left can be my crutch for now. Well, when and if I can manage to get it on track.
I will not sit in a wheelchair just yet. I firmly believe I have millions more steps to take and I won't give in to these disorders/ortho issues, at all.
I know there are many, many people who have no choice and I also know there are people who are bed ridden and I am very sorry for them. I wouldn't wish any of this on my worst enemy.
All I know, is that for me, I won't go down without a fight and I will continue to make whoever it is who keeps throwing these hurdles at me, really angry.
I also won't let sadness and depression get the best of me. I just don't even have time for that, at all. Sure, I am sad quite a few times a day and some days are better then others but, I can't let go of that thread of sanity that connects me to the rest of the universe.

Wednesday, March 11, 2015

Knock Me Down I'll Just Come Back Running...

That has been my motto for many years, well, as long as Tool has been around ;)
I try my best to live by this, no matter how hard it gets and it really does get hard some days. Being positive and grateful for what you have, is just one of those little things I learned as a child. I try to teach my children the same, I think I'm doing ok...

I recently started a couple of other blogs so I could use one as my "pain diary" and maybe use the other as an extension of this blog but maybe slightly different, more for personal opinion about current events and such. I have so many notebooks, filled with thoughts, opinions, viewpoints, dated with notes on specific events, anything and everything that pops into my head. But, this pain diary blog is constantly trying to get into 1st place lol.

I keep putting it off, I don't like to dwell on negative things. Especially when I feel like I am dwelling on my own problems and drama and I know so many people are going through so much.

There is always somebody worse off than you... (That is just another one that keeps me going.) Even though it makes me more sad than anything. I don't like to see or hear that anybody is suffering, it is to depressing. But, it also sure puts your own life into perspective.

The ups and downs are usually evened out but it seems some days that everything just goes downhill. Yep, and it also seems to hit all at once! I swear, when to many things are going right, I am just sitting on edge, waiting for that one "bad" thing to happen and like dominoes, everything will start to topple over. It doesn't have to be that way though, right? There is always that silver lining?

Friends and family are often rolling their eyes at me because I am always able to find one thing, even if it is super tiny, there is always something that we gain from everything that happens to us through our lives.

I know, this post is kind of all over the place, lol, but I have a point somewhere, I think. Maybe I'm just trying to find that silver lining right now and writing helps me with that. If I put my thoughts on paper or draw an outline or type, something comes up and my mind starts going towards the "good side". I guess I am trying to find that right now.

Ok, so, I recently found out that I have a tendon issue, again. That icky, stretchy rubber band like thing that connects your heel to the rest of your foot, the "Plantar Fascia" is the medical term for it. Well, it ruptured and I live with chronic pain/nerve pain/bone/joint/everything pain on a regular basis. This new pain, is a bit above what I have had to deal with so far. I'm shocked to be honest. I mean, I have counted now, about 56 different layers of pain with all of my ailments and all of a sudden, here comes something new and something I haven't experienced yet. I have had a ruptured achilles tendon in my left foot and that was eye watering and was enough to knock me down. BUT, I got back up.

I can't see it this time, I don't know why. Maybe because this rupture is in my "crutch", my "better foot". Now, I don't have a crutch. (Unless there are walls around.) I feel so sorry for anybody who has to endure any amount of pain and I wish there was enough information out there to maybe help chronic pain patients. It seems it is easier for doctors to give us a whole new face and body then it is to treat chronic pain, successfully. Sometimes, I wonder if maybe somebody who isn't a doctor has the ultimate answer to this pain dilemma.

Originally, when all of this started happening to me, I thought it was to slow me down, force me to spend more time with my family and make me stop working all of the time and just rest and relax and stop moving 24/7. I am still a very busy person, even busier then before. But, I am at home with my family a lot more and able to do a lot more with them. I have been blessed with a pretty sweet husband who helps a ton and also is able to provide for all of us so that I am able to work online and grown my business and work just once a week at my job. Or vacation as I call it :D I do get out of the house once a week and work and it is a bonus since I don't have laundry, dishes, cooking, kids screaming, fighting with each other, or 3000 things to do al at once. I do like that though, it's my "normal" and if 3000 things aren't happening all at once, I start to go crazy.

Every time I start to accept my new "normal", something else starts or something goes wrong or something breaks, tears, rips, ruptures, spreads, but, after it's all said and done, I end up enjoying my new "normal" and I find a way to figure it out. We find a way to figure it out. 

I have been learning so much, maybe that's the goal here? I'm not sure. But, if so, I am actually anxious to see what I am going to learn next! I spent the last decade, learning and researching and studying so many things! Everything from weather, to making a lot of our products, blogging, social media to organic and all natural lifestyles, to new cooking and baking tips and tricks to reading lots and lots and lots of good books! We make so many crafts and so much of "our own" everything at home and we have a lot of fun doing it. Maybe something else will pop up and end up being my new hobby or my new project that I try to turn to my new "expertise"?

Accepting the pain, no matter how bad it is, seems to be the way I can manage to live with it. Unfortunately, I have lost faith in anybody helping me to alleviate any of the pain, at least any more then it is already managed right now.

While I would give anything to get rid of some of this pain, I would never, never trade anything in the world, for what I have learned over the past 10 years.


Tuesday, March 3, 2015

Update On My RSD And Bone And Joint Debacle

I spent the day at Hershey Med Center and got some good news!!
 I have an awesome surgeon who will schedule surgeries, whenever I want them. But, only surgeries to cut scar tissue out, remove some metal and somehow take some rheumatoid arthritis out so that I can have a little pain relief from injections.
I can get a series of 3 injections, 3 times per year and they actually help the top of my left foot and I'll be able to move it a bit better, just for a month, so, I have to schedule them for the best times. The first few days are way more intense then my regular eye watering, ear piercing pain levels, but, it subsides and helps that 1 section. (which is 1 of the worst, because, I can't lift my left foot up and it always feels like there are cinder blocks on the top of my foot.)
I still won't be able to wear shoes BUT once neurology, rheumatology and pain management give him the go ahead, he can start more bone fusions and fix the distorted fusion I had done on the top of my foot.
I just have to go into some sort of remission before he even thinks of scheduling those surgeries, but, at least I can have the others for now
It wasn't more than 2 months since my last emg, mri and blood work, but at least nothing went downhill as of today's tests, so, that's also kinda cool. 


This winter has been crazy for pain! Well, this winter has been horrible for many things! No internet service, ice storms, snow storms, high winds, wind gusts, below 0 temperatures, it has been freezing cold! There are days that Alaska was much warmer than Pennsylvania and I just can't believe that, lol. I can only hope that this is soon over and spring is almost here. I just want to open the windows, go outside without having to ice skate, start our garden and pick strawberries and chase the kids out the door everyday so they can play and get fresh air!! 

We have had a storm almost every 3 days since the beginning of the year. I know there are other areas that have had much worse conditions and some areas who have been getting hit with strange weather that they aren't really used too. Fortunately, we are used to this in PA. Well, maybe not the extreme cold and having ice storms so often, but the snow is pretty typical here. 

I believe the weather has a lot to do with my pain levels and on many different levels. Rain, snow, cold, humidity, wind, thunderstorms, snowstorms, ice storms, you name it. But, if I could just get outside, I would be so much happier!! 

I am looking forward to meeting with a fresh, new team of doctors once in awhile and getting some new brains in there to help try and figure out what we can do here. Hopefully, these injections will help for a little while, until I can get into a remission of sorts so that I can hit my new surgeon up for some, well, surgery. Not that I want any more surgery, but, some of this has to be fixed so I can get around a bit better. 

If you are a fellow chronic pain/auto immune/obscure disorder, neurological disorder patient, please comment and find me online! I always love to chat and sign up with support groups and meet new people. Sometimes just talking helps ;)


Monday, December 29, 2014

My Chronic Pain is a Blessing in Disguise

I keep thinking I should stop with this nonsense that I am going to find somebody to fix my weirdo problems with these obscure neurological disorders, bones, joints, tissue damage, missing tendons, LOL and whatever else I forgot to list. (I'm sure you get the picture.)
I've tried, for years, to find a doctor who would be confident and successful in trying to repair, even the slightest parts. (Since it requires a team due to so much going on.)
I feel bad a lot, because I am blessed. Believe me, even this chronic pain/neuro issues, have been a blessing in disguise. (In some ways.) 
When I think about whether I would trade in my ailments for my super hectic, fast paced, workaholic life again, I think I'd stick with this, since it has slowed me down a bit and has allowed me to work from home and spend more time with my family.
But, I feel bad a lot since I keep trying different doctors & specialists, thinking somebody, somewhere, one day, will have a solution for even 10% of this. There are people who have much, much worse going on and I know it could be worse and even though, living with serious pain, several layers of pain, not being able to do normal things, like, walk, run, jump, lift my foot off the ground, vacuum or use a hair dryer without electrical zaps going through my body for 3 days straight, certain sounds set off so much pain, (it's unreal!), not being able to shave my legs, wear jeans, shoes, walk uphill or downhill, up or down steps without it taking an hour, etc etc, is a bad place, it could always be worse.
I'm very stubborn and I believe that sometimes when you're fighting for something constantly, maybe you are a bit blinded to the consequences. I wonder if running to doctors, researching, trying to fix 1 part so that more can be fixed, etc etc, maybe will end up causing more problems in the long run? 
I took a big hit today. I had super, duper high hopes for this and it ended up being much worse then I was, (yes, it's temporary.) but, again, I'm told, "Well, this is last resort." Uh, how many times will I be told that? Lol! It's always, "this or that" "no more solutions", "this won't work", "this is it.", OK, SHUT UP! I don't believe it because I have been told this for a decade and they still say it and still come up with something.
I think the second I give up, it will consume me and I will end up in a wheelchair or the RSD will cover my body completely and I'll be in my house, 24/7  That's why I keep fighting and I'm getting worried I'm running out of options.
At the same time, I also believe that the more I fight, the more I push, the more problems can pop up. 
Yes, I try and use several all natural options but a lot of my issues are actually bone and joint issues, like, real ones that actually need fixed and nobody can fix it, yet.
Natural remedies help a little with MS & RSD but they to are temporary and also help a little, not a ton. (Which is fine and I'm grateful) but there are some layers of pain that NOTHING touches.
Those are the layers that I have a 50/50 shot with getting worse if I continue to fight. and every time I feel I'm getting closer, something comes and knocks me down further and adds even more of a dilemma.
Back to square one again  Completely unravel all I thought and did and start back at the beginning and add more drama to the twisted outline of things that need fixed before attempting a shot at remission so that more can be fixed so that more can be fixed so that more can be fixed, etc etc etc etc etc. It sometimes feels like a never ending road of insanity and it becomes so overwhelming that it takes over my regular, every day to day activities. (along with the pain, old and new.)
So, do I take a break?
Do I keep up being a stubborn, rebellious, hopeful person?
Or do I keep fighting and reading and researching and trying new things?

Tuesday, December 2, 2014

In Search of Fellow RSD Survivors

I don't know how many years I have to have this very strange disorder before any of it makes any kind of sense to me. Although, from what I understand, it doesn't seem to make a whole lot of sense to a lot of people, including many of our doctors and specialists.
Sometimes I feel like an alien from outer space, (It would be kind of cool to be a one eyed, mini, glowing, green martian!) but, really, most people tend to stop paying attention or even caring, after saying, "So, what is RSD?"
I know, it isn't the easiest thing to describe or explain, every day is different and I don't believe I have ever had 2 days that were the same, yet.
I keep a pain diary and try to find some sort of cause, solution, reasoning, anything but every time I think I am getting close to the culprit, it gets even more mysterious.
I wouldn't say I'm Horatio Caine or anything but I feel pretty close to a CSI. Maybe, if Horatio reads this, he can get down to the bottom of this within the hour?
What is my goal with this post? I'm not to sure just yet, I just feel the more I write about my struggles maybe somebody, somewhere will read this and say, "OMG! I know exactly what she means!!" Anybody, I don't care ;)
I have been blessed with friends, (online mainly.) I have found quite a few beautiful people who have big hearts and are fighting the same fight as me. The odd thing is, we aren't the same. None of our cases are the same. We may share some similar symptoms but something that causes a flare up in my friend, Mindi, won't cause one for me and vice versa.
Ok, so, maybe that is the point? Here I am!! Screaming across the internet for any sort of help, maybe advice, maybe let me hear your story and maybe hear mine? As interesting as this disorder is, (don't ask me why, maybe I am a nerd but science and the most peculiar things in the universe are some of my favorite things!)
I'm thinking of publishing my pain diaries on one of my new blogs, I think that will benefit me and more importantly, will help somebody else.
I write and write and write until I get these annoying lumps on my fingers, where the pen sits. Often, I do find that just getting frustrations out helps a lot but, the physical pain is still there. I think I have lost hope of being pain free at any point in my life but at the same time, this disorder has been nothing but a magical blessing in disguise.
If you are somebody who deals with chronic pain or neurological pain, please leave me a comment! If you have a blog, a Twitter, anything, I would love to follow you there and read what you are going through.
I truly believe that the cure for this is quite simple. I don't know what it is just yet but I assure you, it is on the tip of somebody's tongue and I won't lose hope.

Monday, October 20, 2014

#FastAdvil Please!!

* I received a sample and coupons from, Advil and Crowdtap, in exchange for my honest review of this product. My opinions and views are always my own. Free products, samples, affiliates and paid posts  will never change my honest opinion about any product or service.*


As many of you are fully aware, I have RSD. What is RSD, you ask? Well, it is usually pretty hard to explain, but I will try for the gazillionith time....
It is a neurological chronic pain disorder. Many people suffer from this but not all of us have the exact same symptoms, so I will share some of mine.
I have burning pain from my hips down through my toes. This is the most painful part and can last for hours or even days on end when I have an outbreak. Outbreaks are everyday, sometimes they don't seem to end. I also have electrical shock pain and this just comes and goes, as well as regular old soreness, aches, irreversible bone, tissue and muscle damage and rashes, discolorations, welts, hyper sensitive nerves, hyper active senses, hmmm, I actually keep a pain diary and have 43 different layers of pain but I won't force you to read all of that! This isn't school and if I were to list them all with descriptions, I would need an overhead projector and a pointer and I don't, so....
Anyway, on top of my alien like disorder, I was also diagnosed with MS a couple of years ago, after an accident. I can't claim expert on MS because, I really don't know much about what I am dealing with in that realm just yet.
I can tell you that I have had a long history of broken bones in my feet and ankles and some torn tendons, heel spurs and drop foot. All of this finally led to re constructive foot and ankle surgery, which led to this horrific chronic pain disorder.
I have a hard time finding any sort of pain relief, especially after a night of work or even a night at home. (One weird thing about all of my disorders and injuries is that it seems to hurt much, much more if I am resting and then stand up.) I also have a severe problem with swelling. I also can't shave very often due to my skin and nerves being so super sensitive.
I rely on pain medications to help me move, even though they don't work so well. So, I tend to try and find healthier approaches but again, there isn't much out there that alleviates all of this pain. I simply would like to find the perfect combo so that I can keep my pain levels down a bit so I can be a regular person.
(Well, I don't really want to be to regular, that would be super boring!!)
I have found that a good mix of hot water, elevation, no electricity, or at least a small amount of electricity, (I have a strange sensitivity to electricity that becomes very painful as well.) and sometimes heat pads, but most of all, something to make it possible to go to sleep and stay asleep.
I often use, Advil, it has always helped with swelling and made it easier to move and function throughout the day. I do like to have as much help as I can find, to get the edge off a bit.
A lot of people think a pain medication will take all of their pain away... this is not the case. Pain medicines, even prescribed medications, only take away the most brutal, sharp, stinging, excruciating pain that you sometimes deal with, or all the time deal with.
Advil is good for this. I have been a long time, Advil fan, for everything from headaches to after having a baby to migraines to breaks and sprains. Out of everything I have tried over my years on this planet, Advil was already the fastest acting medicine that I could find.
Another reason I always preferred, Advil, over all of the rest, was because of the coating. I have a hard time swallowing pills and can take a few minutes just to down one. This sucks, because, it starts to melt and taste chalky and that is one of the grossest things I have ever tasted.
Advil is coated, which makes it much easier for somebody like me to cope with.
Now, Advil came out with this new product, Fast Acting Advil Film Coated.
First of all, I was pleased with them to begin with and at first I thought, well, maybe it's just me and I won't notice much of a difference. So, I put these heaven sent pills to the ultimate test, after a 9 hour shift bartending.
I have a 30 minute drive home from work and when I get home, I can't get out of my truck very well. I end up sitting there for a while and trying to decide which foot to land on. I usually end up crawling to the porch steps to get into my house since my left foot will not move up at all, I have to use my right leg for support. Well, after a busy Saturday night at the bar, that side isn't even good enough to rely on.
I figured since the old Advil, worked fast enough, I would be able to take 2 of the new Advil, drive home and notice a difference by the time I got home.
(Oh, another form of pain relief for me is music, anything to help me escape.) I drove home listening to the newest 311 CD, screaming along with the lyrics as loud as I can. (That's just another form of therapy I like to use!), got home, parked and wondered how this was going to work....
I did notice the throbbing had calmed down some, I didn't even have the usual problems trying to press the gas and brake pedals and my ankles weren't as inflated as they usually are after work.
BONUS!!!
I am not going to lie and say, I was pain free! (That doesn't happen) but I will say, I am very impressed with, Fast Acting Advil. I didn't take my prescription medicine before I left for home, just the Advil, so I could have a proper review and the funny thing is that I noticed more of a difference with the swelling and throbbing more then with prescribed medications.
I have one more sample pack left and will be using this in the morning which is when my pain levels are through the roof! Plus, it is supposed to rain all night and day and I have a busy day filled with errands and a Halloween parade.
Would I recommend Fast Acting Advil? Of course. I would recommend this to anybody who has to deal with any amount of pain, no matter how big or small. My husband used a pack of these for his back pain and his headaches he seems to have every morning. He also reported that they helped quite a bit with swelling, which, we all know, leads to less pain!
I would highly suggest that you speak with your doctor regarding any possible allergies, drug interactions or pre existing conditions that would make it that you would not benefit with Advil, as you should do with any medicines.
Will I purchase Fast Acting Advil? Yes, matter of fact, I will be using one of the coupons I received, tomorrow.
I will be adding these with my pain regimen, mainly for weekends at work and for rainy or snowy weather.
I am not a doctor and I do not know the pain you may have, but I hope this review has helped you in some way. Maybe you relate to me or maybe you don't. I would love to read comments about your pain relief regimens, have you tried Fast Acting Advil? Did you notice the difference in the time relief starts? Have you ever thought about adding Advil for fast relief from swelling. headaches or minor pain or even breakthrough pain?

Saturday, August 30, 2014

Please Treat Invisible Illness Sufferers with Respect

If you see somebody parked in a handicapped spot and they aren't in a wheelchair, bent in half, using a walker, please be decent and mind your own business.
They most likely are good at covering up any visible signs or there aren't any visible signs at that time.
Same goes for if you see somebody trying to climb into a bus because some jerkoff refused to let you have a handicapped spot because you have a history with the nasty bus driver and he's never been anything but very cruel to you, (that's a whole other story) and he happens to be the slob who is directing traffic and laughs and tells you there aren't any handicapped spots, even when you see them just fine and he laughs and tells you to get out and walk like the rest of the parents.
Ok, I will and thanks, because it took 30 minutes to walk and I missed a few classrooms at open house tonight.
I don't know how people can be so rude.
I couldn't get on and off the steps on the bus without crawling and the 1st bus driver threw a tantrum because he has a schedule to keep. The 2nd explained I shouldn't be scared and I can stand and use the railing like the other parents. Then of course, some ass behind me had to laugh and moan because he had to wait 30 seconds longer to get on the bus.
I hate having to explain what is wrong with me because I absolutely hate it. It hurts enough to have to be "abnormal" and not be able to do simple things.
I try my best to ignore a lot of symptoms, I cancel dr appointments most of the time and I don't pick up half of the medications I'm to take.
I would like to be a regular mom, a regular person, a regular wife, who doesn't have to crawl and can't complete simple tasks and can't do simple things like : walk up & down steps, walk on uneven surfaces or inclines, walk without dragging my foot, or feet, I mean, it isn't any freaking fun and besides all of that, it freaking hurts, terribly bad!
I'm not good at giving up and I'm very stubborn and I like to think of myself as a fighter, so, I'll keep fighting. But, have some freaking respect. Don't laugh and call somebody names or bitch because you have to wait an extra minute, and the ignorant faces just repulse me.
Maybe try having some compassion for once.

 You never know, you may get stuck here like me or the person you are laughing at.
(I just may slice the tendons in your feet and ankles just so you feel a fraction of what I feel, if you catch me on a bad day

Saturday, March 22, 2014

My Uphill Battle

I believe this whole ordeal I found myself in, 8 years ago, after going through hell, and finally accepting the fact that I needed reconstructive foot and ankle surgeries, (which sealed the deal for this ridiculous RSD), was all for a reason. A few reasons really. Maybe I'll keep finding those reasons or maybe I'm just making this all up in my head? I don't know but even if I am just making them up, I guess it's my way of "coping"? This pain keeps getting worse, and lasts longer, and the things that gave some relief before, don't do much at this point. (No wonder this is called the suicide disease!! NO, I don't plan on ever doing that! But I can understand why somebody would find themselves in that situation, sadly.)
The days in a week that I can walk without hanging on for dear life are getting smaller, the hours in a day that I have to get things done and be without pain, or can even move, are getting shorter. 1 good thing is, it seems to have stopped spreading for now!! Maybe it will stay in my hips, down? I'm not sure..... But, I have days that are a little better then the last and sometimes, if I start to get upset, I end up thinking and realizing that this seems to be some sort of blessing in disguise. (no, this won't kill me, so I don't sit and dwell and mope very often, actually, that's rare. There is ALWAYS somebody worse off)
When I turned 14, (legal working age), on my 14th birthday, I ran to school to get my working papers, and found a job that same day. From that point on, I worked nonstop, sometimes 2 and even 3 jobs at a time. I am a major workaholic, working for everybody and anybody, rarely taking off, for years I'd leave 1 job and have an hour before I had to start the next job.
 I broke my ankles, my feet, sprained ankles, and I'd beg and plead with the doctors to please just let me have a walking cast, I promised to take care of it and stay off my feet, then I'd leave and go back to work.....never allowing for anything to heal properly. I canceled doctor appointments and figured if it doesn't hurt that bad, I'm fine, and invincible........until that started catching up with me. and even then, before we moved, it started to get progressively worse and I couldn't move or lift my feet off the ground all the time and the pain was starting to become unbearable, but, I kept working and tried to ignore it. I always figured nothing can stop me, and nothing will knock me down, so I kept doing it.
 I had to start taking nights off of work at the bar, and tried to cut a day out of my 7 day work week, then another, and another.....then, I finally found a job closer to our new town, and I worked like crazy there, but less then any other job I ever had. That went downhill pretty fast. Almost immediately after working there, it was almost impossible to lift my left foot off the ground, so I just started dragging and limping, causing my other foot to get worse.
So, I gave in and went to the doctor and got more xrays and they were all shocked I was even walking at all......so, surgeries were my only option. We couldn't find a surgeon who would do 2 reconstructive foot and ankle surgeries, we went through 6 of them, and they all shook their heads, or said, "I won't be able to help you. I don't know if there is anything I can do other then amputate, this mess" and I thought this was absurd! Surgeons can do organ transplants, give people a whole new face, how the hell are they going to say they can't fix a few issues with feet and ankles?? (well, lol, I guess it was more like 100 issues) So, I just kept jumping from surgeon to surgeon until I found one who swore she could do it, 1 at a time. The left would be in 2 surgeries, the right in 1. Ok, no big deal....well, it all went downhill rapidly.
Then, 1 day, while I was at work, I couldn't move. (Luckily there were a few friends there at the time, 1 also being a bartender/coworker), and I had to sit in the back, while she helped through my shift. I just couldn't do it. I made an appointment to get more xrays and they pushed my surgery date up since there was even more damage done, and I even tried to put that off. Just the thought of having to be on crutches and in a wheelchair made me mad, but I still went in, expecting to be back to work in 6 weeks.... and then it all went downhill, again. She screwed up my surgery, after a few more months, she said she wouldn't be able to finish it, nor would she do the other, and nobody else would even think about trying, so I was stuck. I called and called, asking for help, and a note to get back to work...nobody would help, again.
 My family doctor called and said I'm going to have to go to pain management, since everything was getting so much worse and all of these new, crazy symptoms were starting, that made absolutely no sense whatsoever......and so, I went, reluctantly, but figured they would say, "no worries! You'll be fine in a couple weeks!" But, they didn't.
 I'm not going to go into even more detail about this nonsense........my point started out as being why I think this happened to me. For one, I know this happened, to slow me down and spend more time with my family, for that, I am grateful for this disease.
 The 1 thing that has bothered me most of all when I get into these nutty moods, is that all my life, I didn't really have the greatest self esteem. I wasn't ever the type to dwell on this and think about it much, but it's the way it is. The problem is, I always prided myself on my work ethic, and skills getting a lot done, always moving, running, being the most efficient and fastest bartender ever, and having cool hair and I was able to wear a skirt without having to hide my damn legs. So, I was content.
 But this wicked RSD started in my feet and ankles, and almost immediately attacked my legs, now, its the whole bottom half of my body. I have to hide all the time, I can't wear skirts, unless I'm wearing leggings underneath, my ankles are swollen, discolored, I can't wear shoes, I have scars everywhere, after working, they turn black, even in summer I can't stand the welts, scars, purple, blue, black, scabs from being ripped open because they itch so bad 24/7, I can't shave my legs half the time, razors feel like they are pulling my flesh off, it's a mess.
But, still, I can deal with it. It just sucks. It's taken everything I had going for myself It's taken everything away, and it's only getting worse. (I only recently accepted that fact, because I firmly believe that a persons attitude and thoughts, have a huge impact on their health), But, even the best most positive attitude doesn't always help reality......so, that was another belief down the tubes. Which leads me to believe, on top of slowing me down and making it that I have more time to sit back and enjoy life and my children, this disease, in it's own psychotic way, is forcing me to find something else to be happy about with myself.......so, I'll be working on that, I guess ugh. But, maybe I'm being punished? Maybe when I find all these answers, (I've long since accepted and became part of the agonizing pain, even though it doesn't alleviate even half of it, but it has helped me deal as best I can), maybe I get the gift of remission????????

Friday, January 25, 2013

Phase+ Diabetic Skin Care Duo Review and Giveaway!!


I have to start out first by explaining, NO, I am not Diabetic, I have plenty of Diabetics in my family, and I have gotten terribly close while pregnant a couple times, BUT I do not suffer from Diabetes. (Thank God!!)
 I do however, have major, major issues with my legs, ankles and feet and I have wished for several years for a product that would seriously help. I have RSD and have recently been diagnosed with MS. (I hate to sound like a broken record but I have to explain a little in each post, just
in case somebody new starts reading and is wondering, "Why in the world???") Before I was actually diagnosed with RSD, I have had nothing but problems with my ankles and feet. (My legs didn't start until later in life, and after a failed reconstructive foot and ankle surgery which almost immediately led to RSD and how fast it spread) Ok, enough about that!
My heels, ankles, basically my whole foot, top, bottom, ankle, and even my legs, are constantly changing, some days are worse, some days are not as bad. But for the most part, I have super rough skin, very dry skin, and I mean, very, very, extremely dry skin!! I constantly itch, on top of constant pain, I am up at all hours of the day and night, scratching and going crazy. Especially since even the slightest touch leads me into hysterics due to hyperactive nerves! It is really rare that I can even shave my legs because of the same issue. It drives me nuts all hours of the day and it is an odd disorder to deal with. Not to mention the affects something like this has on your self esteem.
 I tried the Phase + Diabetic Skin Care Duo mostly because I thought it would be great to have products that not only might help my condition, but also could lead to increased blood flow, (which I have a big problem with! am always being checked for blood clots due to all of the swelling in my affected areas), help with severely dry skin, and possibly help exfoliate and soften my feet and ankles. I am so ready for spring time now!!!!
 I can't wear shoes of any kind, well, I can wear Crocs, but only Mary Jane styles. Those still hurt like crazy and some days I can not even attempt to get these on. I wear slippers, year round, and slipper socks, and again, only Mary Jane styles. I have a long list of "issues" with my feet and ankles, and I suffer from drop foot, so even the slightest touch is brutally painful. RSD also causes this, so it's always a fun time to try to get something on just to walk outside. This also isn't something I am to happy with because my heels are always cracked, hurt, dry and you can see this through the shoes and slippers I have to wear. My ankles are especially bad after a long night at work, and they swell up sometimes it seems 6 times their "normal" size. Not good for confidence, not to mention, this just all adds to the constant pain. BUT, when you find a product that can truly help with these issues, the pain may also ease up a bit! (At least the pain that comes from swelling and dry skin) AND I have to say, Phase+ Diabetic Skin Care Duo has been and has remained a glorious asset to my nightly routine!
 Another thing that has to be mentioned, are the ingredients that are in the Phase+ Exfoliating Wash and the Foot Therapy.
 Foot Therapy: Key ingredients:
 • Peppermint oil is soothing, helps increase blood flow, and has antiseptic qualities.
• Ginkgo Biloba is an herb that contains antioxidants and has anti-inflammatory properties.
• Dimethicone is an oil that remains on the outer layer of skin making it an ideal ingredient for moisture retention and provides an excellent protective barrier for the skin.
 Exfoliating Wash: Key ingredients:
 • Petrolatum, an oil-based emollient, helps seal in moisture which helps skin from getting dry.
 • Grape seed extract contains antioxidants that help protect skin from damage. • Buffing beads help exfoliate thick, dry skin.
 Oh man! I am not used to products that smell so lovely when it comes to exfoliants and creams that are created for medical conditions. Usually, at least what I have tried in the past, yeah, they don't smell so pretty.
Phase+ Exfoliating Wash, has a very uplifting, refreshing, peppermint scent that lasts for quite some time. This is the perfect pick me up in the mornings, and is the perfect ending to my day of being busy whether I am at home here at our zoo, or at work on the weekends. (HINT: This is especially wonderful to use on your whole body too! Not just your feet and ankles!!) It goes well with my morning pot of coffee;) The buffer beads actually work too! I noticed a difference with the first use, and it only gets better from there!
When you pair it up with Phase+ Foot Therapy, you are getting close to heaven, and no, I'm not exaggerating! The Foot Therapy actually has helped quite a bit with my cracked heels and dry skin problems. The fact that it also helps promote blood flow is another gigantic plus for me! It's been a long time since I've had smooth, moisturized skin that isn't covered in rashes, bumps, and all of the other goofy visible skin problems that unfortunately come with RSD. Promoting blood flow for me and from what I see from family members who suffer from Diabetes, is pretty hard. So, when a product says it can help, and does, it's like waking up on Christmas morning as a kid! It softens calluses and helps your skin look much healthier. It feels comfy too and even with a pair of Mary Jane slipper socks, if you keep them on overnight, you will wake up to some almost sandal ready feet in the morning! ( I say almost for me, with the 1st use, this could be sandal ready for others who aren't as ugly as mine;)
I think this will be yet another addiction of mine, I don't know how I can manage to go without now that I have tried it and have seen improvement, lots of it just with the first set.
 I was also pleased to see that you can buy Phase+ Diabetic Skin Care Duo, at Walgreens!
 AND if you click here, you can be grab a coupon for $2 off!!

 I would love to hear from anybody who has tried these products! What did you think? Did they provide any relief?

GIVEAWAY TIME WOOO HOOOO!!!!

 ENTER THE RAFFLECOPTER BELOW TO WIN YOUR OWN SET, JUST LIKE THE SET I REVIEWED!!



a Rafflecopter giveaway  I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Thursday, January 17, 2013

Ateevia Botanica PRIME Daily Pain Defense Cream Review


I have been diagnosed with RSD for about 7 years now, and I have been suffering from chronic pain for several years before this.
 Since my teen years, I had several sprains, and breaks in my feet and ankles, which I later learned, never healed properly. I was actually born with some foot problems, and even though I was in braces for a while when I was a baby, and a toddler, my feet still turned in quite a bit and I was diagnosed with "weak ankles".
When I was a teenager, I started waitressing at local pizza shops, and then a sports bar, which later led to my bartending career. (20+ years of being on my feet and usually always on cold concrete floors)
 Anybody who has ever bartended, know that this can be a very brutal job, long hours, no breaks, and very rarely sitting down!
 I found a surgeon after a few years off searching, to help me with a reconstructive foot and ankle surgery. She finished the left foot and ankle first and scheduled me for the right foot and ankle to be done 6 months later. Well, after a year, I was still stuck in a wheelchair, and in much worse pain then I ever was in my life.
 I ended up leaving several messages, asking what I am supposed to do, no answers, I went back to my family doctor and he sent me to physical therapy, and more orthopedic surgeons, and they just continued to refer me elsewhere and send me away after apologizing and admitting there was nothing they could do.
 I have been to several different doctors, surgeons, neurologists, pain management, and nobody can do much of anything for me, except "treat" my RSD.
 So, after all of my injuries, torn tendons, failed surgery, heel spurs, drop foot on both feet, and many fractures that made my feet and ankles even more weak, I ended up with RSD, a neurological chronic pain disorder.
 I have also been diagnosed with all kinds of arthritis, and most recently, MS. On top of this, the tendons that my original surgeon "repaired" have since re torn, and my heel spurs are back, and the hardware that was put inside my heel, foot and ankle, are supposed to be removed, except, I can't find a doctor brave enough to attempt this crazy mess I'm in!
This has affected my life immensely! My family has suffered a great deal because of this and I'm not always able to help or do as I used too. I still bartend pt on the weekends, even though it is getting much harder and it takes the whole week just to get back to "normal". There are days I can barely move, and there are days I just get terribly sick from medications, and from being in constant pain. I get very little sleep, and it takes an average of about 4 hours to just get into an ok enough state just so I can go about my day here with my little ones.
 I keep a diary of my pain for my pain management doctors and especially since RSD is such a weird disorder, something new seems to happen each day, as well as spread like wildfire throughout your body.
Pain management is something I can not always even get much relief from, if at all. On top of it being expensive, and after so many treatments, certain things just don't work anymore. I have had so many nerve blocks, and injections, and different prescriptions. If insurance would cover some better treatments for RSD, I could possibly take advantage of Calmare Therapy, Hyperbarrick Oxygen Chambers, and my newest referral is for nerve cutting surgery, which I really don't want. However I don't think this is getting any better, it continues to go downhill.
I have been going back and forth with different pain relief treatments, creams, vitamins, capsules, and I have tried so many different products over the years and have had some of the worst experiences and some that were not as bad but didn't help much of anything.
I recently had the opportunity to try, Ateevia Botanica PRIME Daily Pain Defense Cream, and I can really attest to the fact that this has provided me with a great deal of pain relief! (and it came at just the right time of year!!)
Ateevia Botanica, is formulated to alleviate inflammatory pain, such as: Arthritic Joints Carpal Tunnel Syndrome Tennis Elbow Tendonitis Lower back pain Heel pain and Sports bruises.
 Another reason I was interested in this product is because it is made in the USA!!
 Some of the other reasons: because Ateevia is an all natural formula that is one of the most therapeutic topical analgesics that are out there today. PRIME stands for, Phytonutrient Rich Inflammation Minimizing Extract.
 We've been trying to convert to all natural and organic in our home, and this is something I would love to focus on this year and hope to replace even medications that I am prescribed. Ateevia, is a good start!
 While my chronic pain disorder may be a little different then others, I do also suffer from a few other chronic pain disorders as I mentioned above. The arthritis, and constant, achy, soreness around my ankles and heels is what bothers me most mornings. It seems my doctors steer clear of treating this, even though I think and wish it could be treated separately because whenever I do have a little relief, I can get around a little better. It all kind of depends on the day and what hurts and bothers me most when I wake up.
So, anyway, I started using Ateevia on my ankles and heels, in the morning. I didn't notice a difference right away, (Ateevia doesn't claim that results will be instant, it of course will depend on amount of pain, type of pain, etc. You can refer to their website to read more testimonials about their product and more about how you may need to apply more then once a day, or even several times a day) I did notice my skin around my ankles was quite a bit softer, and that was instant! That was enough to keep me content! I have such bad swelling some days, and super dry skin. I try so many kinds of lotions, body butters and creams and they seem to soak right in and disappear. Ateevia, is much different and I am more then pleased with this. It's rare I can not be so embarrassed with my giant ankles, legs and feet;)
 The scent is also pleasant and I even received compliments on this. Oh, and it makes my hands very soft. Most creams and topical ointments I tried in the past have a very mediciny type smell to them, and they are pretty greasy. It seems to be, "just right" with Ateevia Botanica, because it does soak in and I firmly believe has actually started to heal my extremely dry skin from the inside out. (at least the dryness, but this is the worst of all of it with me.)
After a few more applications on the first day, I could actually notice a difference in the layers of pain that this cream helped! (The achy, bone, sore, beaten up kind of pain.) It has also helped with some newer pain I acquired since my accident a few months ago.
 Nothing ever will take chronic pain away 100%, but when you find another piece to the puzzle and you can get just one step closer to having lower levels of pain each day with a specific product combination, or even just by itself, your life becomes just a bit more bearable.
 I do recommend this for people who are struggling with various types of pain and inflammation. I will be adding this in the mix on a regular basis for my pain days!
You can also find Ateevia on Facebook!
I received one or more of the products mentioned above for free using Tomoson.com. Regardless, I only recommend products or services I use personally and believe will be good for my readers.

Saturday, December 29, 2012

Our Year in Review

I am not a person who likes to wallow and moan and cry about my sucky life, lol, mainly because it isn't so bad;) I would never trade it for anything! But there are times when it seems our bad luck just never ends.
 2012 started out being a good year. In the 2nd week of January, we drove to The Children's Hospital of Philadelphia, with our then 1 year old, Deegan, for a 2nd opinion about his health and MRI's and other ridiculous test results.
This is Deegan's Zoolander face;)
 He was cleared completely of everything,(with the exception of the club foot and cleft lip, which we already knew for sure and he has been treated and had his surgeries, and will continue too.)
I know I might drive people crazy with my Deegan miracle story but I feel the need to share it sometimes, just in case we can reach somebody new once in a while;) the neurology department was nothing but courteous, friendly, and answered every single question we had and sure enough, told us to believe our instincts because they were real.
I thought that at that point, we were in for the best year ever.
This is me and my boyfriend Deegan.
 He has become quite the photographer with my new Smartphone!
 It really wasn't all that bad, and I know there have been so many families that have had much worse struggles this year.
 So, I kind of feel bad at any time I start to complain or feel sad about things, but hey, we all have to cry sometimes, right? Between our new (used but new to us), tractor trailer, (my husband is a self employed truck driver), needing tons and tons of repairs, and I am not talking nickel and diming us.
 No way! This thing has literally cost us as much as our home. Of course our house didn't cost us a fortune. We kind of lucked out on that deal, however, we are endlessly repairing this house too!
But, our repair bills from this truck are very huge and we still have a balance since the truck always seems to be in the shop. It is right now as I am writing this post! But, see, we replaced the motor, which was a bit over $20k just by itself. So, we kept thinking, well, it's almost like new, what else could possibly go wrong?? No, we aren't made of money. Paying these repair bills off required payment arrangements with the shop, my husband working as often as the law allows, and me bartending every weekend and picking up as many hours as I can without having a babysitter. (My husband is my "babysitter" lol) Since my husband is self employed, yes, he gets paid more then a regular truck driver. Until you deduct the fuel, tolls, repairs, taxes, insurances, workers comp, and the list goes on.
The bottom line is not as pretty as some may think. But we keep waiting because one day, we will have a paid off truck, (like this one is), and it will run smoothly and have no major dilemmas. This truck decided to break every week for a couple months, and always BIG breaks. Then we get a break, then another HUGE problem, and on and on and on and on. Ok, so no big deal, right? This is something we can cope with. Of course! It just requires more coupons, staying home more often, and re structuring our budget. Easy peasy:)
 Actually, now that I am thinking back in my "year in review", it doesn't seem so bad. Of course I don't want the extra bills again this year, or ever! But there is plenty I wouldn't mind repeating:)
Our oldest daughter, Bethany, was expecting ur first grandbaby in 2012, and I was so excited about being a grandma, I decided to go ahead and finally get a tattoo that I wanted for years and years! I am a big horror movie fan, I have always been a horror fan, movies, books, shows, you name it! I especially have always loved Pinhead from Hellraiser. I had 1 tattoo before this one, actually it is our wedding rings:) (and NO, we didn't copy Tommy Lee and Pamela Anderson! Matter of fact, they copied us! We had ours done 1st!!) My husband has bunches of tattoos, and luckily has a super fascinating tattoo guy he frequents. (when his allowance covers it!) I have been after this guy to do a tattoo of Pinhead for years and he finally said he would do it. I love the way this artist sees! It's fun just to watch him work.
It isn't complete yet, he will be doing the puzzle box at some point here, and I'm not sure of what else I am getting. Maybe some centobites or maybe other horror guys. Either way, I am more then pleased with the job he did. Whether you like Pinhead or not, you gotta admit, this is a fine tattoo;p (oh, it is on my back, I am a mom, and even though I have no problems with people having tattoos anywhere on their bodies, I can cover mine up to be presentable and not scare anybody!
 Alright, maybe 2012 was kind of cool... Well, it got very cool when our first granddaughter, Lillian Ainsley was born on June 30th!! She is such a precious little princess and her smiles and beautiful eyes just light up the room when she comes to visit. I was to be in the delivery room with my daughter, lol, her boyfriend almost passed out, haha! But as I waited impatiently for the nurse to get done chit chatting with her friend on the phone, my daughter gave birth to this little angel, and I walked in a few minutes afterward. Lillian was already a smiley little thing and it was just a wonderful day all around!
Here is a picture of our gorgeous lil princess grandaughter, Lillian;)
 About a month after Lillian was born, she was diagnosed with Downs Syndrome. This was a bit upsetting for our family, but we are so happy to have her! She is such a sweet little blessing!
 I am so proud of Bethany and Lillian's dad for being calm, cool and collected about the whole thing. Of course nobody wishes this on anybody, but hey, this is life and I firmly believe that God will never hand you more then you can deal with. Lillian is growing perfectly and she is exceeding many milestones and her health is pretty good. She does have some holes in her heart but they are expected to heal as she grows.
Onto some of the bad news again.. Many of you know about my accident I had a few months ago, I totaled ,my 2003 Ford F150, the love of my life! and I broke many, many, many bones, some of which will always ache, but finally, after a few months, I am almost fully recovered.
This accident threw me back so far, something I am not used too. No matter how hard or bad it hurts, I always keep trying, which is actually quite foolish most of the time. But I am to stubborn.
I also had worse luck with my RSD, which decided to spread to other parts of my body. This is a constant struggle and there is no cure as of yet, so this is always something that affects our family in some very big ways. I am always trying to find a way to gather enough money for some alternative treatments and hopefully soon, this will happen. In the meantime, I will deal with it as best I can, well I shouldn't say I will, because my kids and my husband and the rest of my family are all very supportive of me during this whole process.
 I also have been diagnosed with a few other things this year, including MS. Don't ask me about MS because I have no clue;) But I am hoping 2013 brings some good luck or answers or maybe effective treatments for all of it. ( I see my new rheumatologist in March) Other then these "main events", we had the typical bad luck as we always seem too. The constant dr appointments, extra bills that pop up just when you least expect them, and then of course, due to my accident and not being able to keep up with this blog, I lost many sponsors, authors, publishers, opportunities, a writing apprenticeship, and more. That has/had me in a slump for awhile, and I tried to explain to some, even offered  proof, and apparently, it doesn't much matter. With some it did, but not with all. I am hoping to catch up in the next few days, which is a lot of work.
  But I have to do what I can to regain some of the trust I had with people and brands and businesses and of course, the authors of the books that we love to read and review and share.
 On a lighter note, Genevive started school this year, and attended her first dance:)
 Aaron's grades have been awesome as usual. Although his stomach problems are still puzzling doctors and he still deals with acid reflux and missed school. My husband recently had to help find a home for his dad and has been dealing with his dad's bank, expenses, apartment, belongings, and visiting his dad. Unfortunately, there are some not so good things that will be following us into the new year, but I am also curious to see what else 2013 will bring!

Wednesday, September 26, 2012

Lost Posts and Book Reviews HELP:)

I am having a major issue for a couple months now, all pertaining to this blog. I was hacked once, a transfer failed once, and I lost several book reviews and posts and even a few giveaway posts. Then, Blogger decided to switch on me, and for some reason, if I have html code in a post, my paragraphs are not starting and stopping properly?? Besides all of this, my RSD, (I know, and I am sorry if I seem like a crybaby), but it is getting worse and spreading and between neurology and regular dr and pain management visits, I am so ready for vacation!! I am not happy with my recent dr visits and diagnosis, nor do I approve of my medications being upped, and new ones added and being told I can not really rely on Calmare, to help me. I just want something, anything to even just take away even a third of the pain and discomfort!! But for now, it is being "controlled", it is better then it was the last few weeks, and months since it has progressed, yet again, and so, I am able to re locate all of my lost posts, and pictures. Well, I can not really locate them all, I have no clue as to what happened exactly, other then the fact that I was hacked, and I paid somebody to transfer me, and well, they transferred me back because they "lost" so much in the initial process. Luckily, I found a very reliable blogger, Blogelina, and she will be taking over from here on out. I am only 1 person, and not a business, so therefore, I do not have the type of money to spend to fix and host and run my blogs. All of my networks and sites are unfortunately just run by me;P I am planning on this to change, especially since I now see the light at the end of the tunnel, with all of the technical difficulties, and I also am being "managed" by my team of doctors. (Even if I hate it, I can at least get on with my life, so I am grateful!!) If anybody has tips, pointers, suggestions, on how to fix my paragraphs, or maybe knows of a book I can buy and read that will maybe have every answer to every question, issue, concern, dilemma, that a blogger may have, lol, please, I am begging you, to let me know what that book is!! It takes me so long to find answers to my crazy, adventurous blogging career!!

Thursday, September 13, 2012

I am Fine, Thank You! (Not Really) How are You??

I have been going a bit nutty lately, (nothing really new, lol, but more so then normal).
I apologize beforehand if you are reading this and maybe are sick of hearing about RSD or CRPS or about how I am in constant, real pain, but I can't sleep right now, and I haven't been able to catch up very good lately on anything with this blog, because of this awful disease. I am never, ever the type to sit here and wallow and think that I am worse off then anybody else, I am the opposite, but I do have days when I am in pretty bad shape. That has been pretty often lately...
I am actually anxious to be going to my family doctor first thing in the morning because even if I don't have health insurance right now, I need a trustworthy person to talk too, and hopefully re evaluate and re structure my pain management. I also like to hear from time to time that I am not crazy, because sometimes I wonder how this is possible and how can I be in this kind of shape, I mean, I don't "look" disabled, and my life isn't threatened in any way, I am just in constant, consistent, pain.
So, I wrote up my pain diary, 5 pages, both sides, covers the last week or so, and i am hoping he has the time to listen to the newer additions to the now, 40 layers of pain that I go through at any time. I need a new plan or some sort of hope, something to look forward to, I need to be able to catch up with books, book reviews, and housework, coupons, my little ones, and get back in the swing of things. But the newest symptoms have led to some rather horrible days and nights, some where I can barely move and I have to at the least, have some sort of way to get the newer pain, to come to a halt. I am planning on soon raising enough money for Calmare therapy, which isn't covered by insurance anyway, and is going to cost a little, and some travel. But not to much, and I am able to see the light;)
Instead of being "hit" with pain episodes, I am "hit" with small, short fragments of bearable pain, or enough strength to force myself to do what a mom, or a wife, or a human, or a blogger has to do, and wants to do. When I am "hit" with these good times, I spend most of the time, frantically trying to figure out what in the world I can quickly accomplish, often times, I only figure it out by the time the burning, or the tingly, electric shock pain start. Then I am back to being "me' again.
If you ask me what RSD is, I would have to say I don't really know! Other then the R standing for REFLEX and the S for SYMPATHETIC and the D for DISORDER, I have been diagnosed 6 years ago with this, and still have no idea what to do or what to expect. I have no clue as to what is normal, I don't know really anybody to communicate with who knows exactly what I am going through. I have some friends online, but this disease seems to be very different in all of us.
What I do know, is:
I have dealt with chronic pain for several years. I finally gave in and had reconstructive foot and ankle surgery about 6 years ago, it failed miserably, and the surgeon kinda just shooed me away and referred me to pain management. They basically said, "You have RSD, physical therapy, medications, injections, nerve blocks, blah blah blah" Well, I got nerve blocks, epidurals, they helped a little at first, then gradually stopped helping at all. (Sorry!! I am trying to make this as short as possible, I don't want to bore anybody!! Lol!!)
What I make of this 'disorder" is, it seems that any type of trauma, pain, injuries, pregnancies even, even bug bites, sunburn, anything that maybe caused any type of pain, on any level, is repeated over and over and magnified on so many levels.
My RSD started in my feet and ankles, and started to spread to my legs, my knees, then to my hips, then my back, jumped to my right eye, now my whole back, and the limping causes more issues, and I still have tendons that are torn, bones that are crushed, and metal that needs taken out of my ankles.
Each part of the affected parts have had some sort of trauma, and I started to realize this when I started getting a piercing, sharp, burning pain in my right eyeball. The ankle, feet and leg thing was going on for a while before my RSD set in, so that was pretty understandable. But my back, apparently just spreading??
Then I finally got a tattoo I always wanted, which is on the top of my back, I absolutely love it!! It really didn't hurt when I got it, but now, I am ALWAYS being tattooed! Crazy!! It hurts very much, always burns, always sharp, razor type slicing in my skin, and nothing seems to help.
The most recent of my pain, just the last few months, I thought I was going insane, for real this time.
I have 4 children, 2 boys, and 2 girls, ages 20, 9, 5, and 2. My pregnancies with the little women weren't bad at all, a breeze actually! The boys, way different story! Twice as much weight gain, and twice the cramps, and the contractions!! OMG!!! My 9 year old, caused some pretty intense back labor, not long, (all of my babies were born within 3 hours, and got less time with each one), but the intensity was terrible and even though it immediately stopped the second he was born, it left lots of achy, dull pain behind! My 2 year old, yikes! I had this horrifying squeezing, like a snake, squeezing my insides and letting go every few minutes, both of these contraction types are now happening on a regular, daily basis today. (NO!! I'm not pregnant;)
I guess one of the points I am trying to convey here is, I have no idea what is happening to me!! I have found that everyday is different! Odd things like certain noises really hurt and radiate on so many levels! I have hot, burning welts that appear out of nowhere on my legs! Contractions every morning for a few hours, and sometimes they last all day, and I really need them to stop!! I need some answers, some sort of light at the end of the tunnel, and I would love if any of you have any advice or tips or know anybody with this disorder that maybe has had any relief from anything.
I have to get it back under control, it seems I had it under control, it didn't fade, but I was used to it. But, everytime something new starts, it takes a while to understand what is happening, and well, to get used to it. I really miss my normal life, and I hate that some of my children never really knew the real me. They only know me as this mom who limps around, and can't take them to the park, and can't get up and down steps, and can't get everything done.